Self advocacy for children or young people who are speaking in sentences

An open chest with colours coming out and a symbol on the front.

Self-advocacy is about speaking up for yourself – knowing what you need and telling others about it.   

Who is this advice for?  

Self-advocacy is especially important for children and young people with different needs , as it helps them feel more confident and become more independent The following resources may be useful for children and young people who have a diagnosis of autism or are on the waiting list for an autism assessment or who associate with being autistic. It might also be helpful for children who present with social communication differences but do not necessarily associate with being autistic.    

How will this advice support my child?  

(Setting staff can use this wording to write targets)  

These resources are designed to support your child to: 

  • advocate for themselves within everyday activities and routines
  • advocate for themselves when solving problems or during communication breakdowns
  • communicate to advocate for different supports, due to their communication differences. 

Developing self-advocacy skills is a gradual process, and it is never too early to start working on them.  

It does not matter how a person communicates; they can advocate for themselves. A child or young person can advocate for themselves using spoken words, written language, symbols and sign, whichever way they find it easiest to explain their needs and what they need the other person to do to help them. 

Learning to advocate for themselves is key not just at home but also at school and later in the workplace. It allows people to express their needs, make choices about their lives and stand up for their rights. 

 

Advice

Consider the use of self advocacy scripts

Some young people find it helpful to create scripts to advocate for their needs, especially when verbal language becomes more difficult if they are dysregulated or in an uncomfortable environment. Help the young person create scripts for different situations.   

Some young people find it helpful to keep a list on their phone to refer to wherever they are or to send over to different people. 
The scripts do not have to mention the person has a diagnosis of autism.  

'Instagram Neurodivergent Lou Scripts I rely on': examples from neurodivergent_lou.

Create a one-page profile (or communication passport)

Create a one-page profile of their strengths, needs, and preferences, aiming to provide a quick overview for those who interact with them. It would highlight their unique qualities, communication styles, and how they best thrive, rather than focusing on deficits. This profile would be a living document, evolving as their needs and understanding of themselves change.  Find hundreds of blank templates of one page profiles at Sheffkids, relating to different interests.   

Work through the “My Autistic Profile” – by Autistically with the young person to create a profile of their communication, triggers, preferences and supports.

Use a menu of reasonable adjustments

It can be hard for autistic person to identify their needs in a given moment and then what they need as a reasonable adjustment. Having a 'menu' of adjustments can be modelled to the child and help them to pick what they want/need.

We advise you create an individual menu for your child, dependent on their specific differences and preferences.   

Browse the 'Menu of reasonable adjustments' advice sheet

Browse some more examples from the Autistic Girls network 'Reasonable adjustments possible at school'

With the child or young person, explore the free downloadable self-advocacy tool from Divergent Perspectives, to help them advocate what will make school easier.

Further support

Neurowild“Let’s talk about communication” 23 page resource.  

This resource includes 18 illustrated pages and 2 questionnaires for older children. Child friendly, for adults to use with children at home, in class and so on. For older children it can be used as a conversation starter. 

One questionnaire highlights specific things which make the classroom feel hard, and the other is for highlighting the specific communication accommodations or modifications that a child would like to see used in their class.

The language is more advanced on these questionnaires (they would suit late primary/early secondary children ), and would be a way they could self-advocate what they need.  

For secondary schools NEST ( NEurodivergent peer support toolkit)  

Devised by a team at Edinburgh University, is an excellent way to develop the self advocacy, understanding of neurodivergence, gain peer support and many more.  

The resource is a suite of materials to facilitate peer support for neurodivergent young people in mainstream secondary schools. 

The NEST handbook: 

  1. ​provides information about neurodiversity, neurodivergence, and peer support
  2. explains who NEST groups are for and what the ethos of NEST groups is
  3. provides guidance for setting up and running a NEST group, including how to ensure the groups are student led, activity ideas and resources, and safety considerations
  4. provides information about some of the policies and legislation that align with NEST-based groups. 

The handbook will help you to decide whether to set up a NEST group in your school, and if so, how to do it. 

Information webpage

Ambitious about Autism 'Self advocating as an autistic young person': learn about self advocating from the autistic community.