Support for autistic people and people with learning disabilities

Additional support

HCT are committed to reduce health inequalities for everyone and recognise that people with a learning disabiity and autistic people require additional support in accessing healthcare.

 

People with a learning disability, autism or both should receive treatment, care and support that are safe and personalised and have the same access to services and outcomes as their non-disabled peers.

 

 

 

 

Supporting you

How you will be supported

HCT staff will ask your consent before any care and treatment is provided. You are entitled to have any information provided in the way that you need and be supported to make your own decision. If you have any communication needs,  let your clinician know how best to support you. You may bring along someone to support you during your appointment.

 

Shared decision making

Shared decision making is about helping all patients make informed choices about their health care, by discussing:
  • What their choices are
  • What is good or bad about each choice
  • What support is available to help them make a decision that is right for them

 

In shared decision making we want you to know we are listening to you and take time to understand what you want - rather than what we think you want. 

 

Mental Capacity Act

All HCT Clinical staff are trained to understand and apply the principles of the Mental Capacity Act (2005). Patients are provided information and supported to make their own decisions about their care regardless of a diagnosis. Where the patient is unable to make their own decision, they and their family or carers are involved in the decision making process to consider all available options and make a best interest decision.

 

Advanced care planning

Advance care planning offers people the opportunity to plan their future care and support, including medical treatment, while they have the capacity to do so. Not everyone will want to make an advance care plan ( ACP), but it may be especially relevant for people at risk of losing mental capacity - for example, through a progressive illness like dementia. The approach used is based on individual choice so it’s important to have these conversations early as possible.

 

Talking about the end of someone’s life can be difficult and family members may not want to discuss this. However, to get the care right for someone at the end of their life, whenever that may come, we need to plan.

 

There are many examples of Advance Care Plans and in East & North Hertfordshire the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) Tool is in use. This is a form that records conversations with a patient on Advance Care Planning, Treatment Escalation Plans and Do Not Attempt Cardio-Pulmonary Resuscitation (DNACPR) in one place.

 

 

LeDeR

LeDeR stands for Learning from the Lives and Deaths of autistic people and people with learning disabilities.

 

HCT are always looking to improve the services we provide for autistic people and people with  learning disabilities and one way we do this is by being active members of the Hertfordshire LeDeR review panel.

 

STOMP/STAMP

HCT are committed to STOMP (Stopping over medication of people with a learning disability and autistic people) and STAMP (Supporting treatment and appropriate medication in paediatrics).

 

STOMP and STAMP are about making sure people with a learning disability, autism, or both are only prescribed the right medication, at the right time and for the right reason.

 

You can speak to the services you see in HCT about STOMP and STAMP.

 

You can also read more about STOMP and STAMP here:

 

Easy read leaflets

 

Safeguarding

Our Trust, as with all other NHS bodies, has a statutory duty to ensure that we make arrangements to safeguard and promote the welfare of children and young people, to protect adults at risk from abuse or the risk of abuse and support the Home Office Counter Terrorism strategy CONTEST, which includes a specific focus on PREVENT (preventing violent extremism/radicalisation).

 

Click here to read more about Safeguarding

Reasonable adjustments

Creating a safer and calmer experience

Reasonable adjustments can help make life and use of services a safer and calmer experience for those living with a learning disability and / or autism.

 

Watch the video below to learn more about reasonable adjustments or go here watch the video 

 

If you or the person you care for requires reasonable adjustments to support them to access services, contact the team directly or the HCT Referral Hub on:  0300 123 7571

 

My Purple Folder

My Purple Folder , is a health passport that is offered to adults with learning disabilities provided by Hertfordshire County Council, and supported by HCT. Bring along your ‘My Purple folder’ to help your clinician understand your needs and they will complete the Health Action Plan.

 

Easy read materials

HCT are developing easy read leaflets, some are shown below. Please speak to your clinician if you require a leaflet in an easy read format.

Making feedback accessible

Ask Listen Do

Ask Listen Do — a nationally focused piece of work aimed at improving healthcare experiences for people with a learning disability and or autism. We have a group of staff who are working to make feedback more accessible for people with a learning disability and or autism, which includes using more easy read leaflets and asking people what adjustments they need so they can share feedback with us.  

 

This aims to improve services for children, young people and adults with a learning disability, autism or both, their families and carers. It is about making it easier for people to give feedback, raise a concern or complain about their health care, social care or education. This improves lives, the services people receive and it helps to keep people safe.

 

 

Hertfordshire Community NHS Trust is committed to improving experiences and outcomes for people who are autistic and/or have a learning disability, their families and carers.

 

We want to make it easy for you to tell us about your experiences, really listening to what you are telling us and doing something positive about this.

 

We would love to hear from you so we can get better. 

 

Telephone: 01707 388 036
Email: hct.patientexperienceteam@nhs.net  or scan the QR code

 

Staff training

Oliver McGowan

The Oliver McGowan Mandatory Training on Learning Disability and Autism is named after Oliver McGowan, whose death shone a light on the need for health and social care staff to have better training. The Health and Care Act 2022 introduced a statutory requirement that regulated service providers must ensure their staff receive learning disability and autism training appropriate to their role.     

 

The Oliver McGowan Mandatory Training is the standardised training that was developed for this purpose and is the government's preferred and recommended training for health and social care staff. 

 

Oliver's Training also supports the NHS Long Term Workforce Plan ambition by upskilling the wider health and care workforce to provide appropriately adjusted care for people with a learning disability and autistic people to reduce health inequality.

 

Together we can prevent the many avoidable deaths like Oliver’s from happening again. The animation below aims to help staff and employers across health and social care to understand Oliver's Training and why it is so vitally important.