Carers stories

Good experience

Ward based care

  • Holywell Ward - fantastic care from all staff.
  • Own room, therapists on site, Jenny the Physiotherapist was very helpful.
  • Ward sister greeted carer, gave her a tour, asked if they had any questions and could not have been more helpful.
  • Therapy excellent, 3 times a day.
  • Carer welcome to sit in on any sessions.
  • Discharge meeting held that included Community Psychiatrist for Neurological outpatients.
  • Treatment at Neurological outpatients twice a week was brilliant.
  • Communication between Holywell, Neurological outpatients and the Carer were very good.
  • Care following the stroke was wonderful.
  • Very thorough assessment prior to discharge.

Care at home from Integrated Community Team

  • The Occupational Therapist Megan was really, really good. She talked to Mum and found out what her needs were.
  • Equipment such as walking frame, toilet seat frame and bath seat were provided.
  • Prior to this Mum was not safe, she was hanging onto furniture and having falls.
  • The Therapists did what they said they would do and no chasing up was required.
  • The Physiotherapist and Occupational Therapist looked at Mum as a whole person.
  • Could talk to Therapists about health concerns that were significant but did not warrant a trip to GP.
  • Contact numbers left.
  • The Therapists visited at home following discharge from the rehabilitation ward. This was a fantastic service enabling continued work towards achieving independence goals.

Needs improvement

Carers at home (not HCT service)

  • Really difficult to find home carers despite being provided with information about different agencies.
  • Carers constantly changing, no consistency.
  • Expected times of visits too long a time frame of 2 to 3 hours. 
  • We felt like prisoners in our home, I could not pop out when they were coming 4 times a day as no one would have been there to let the carers in, bedtime could be as early as 6pm.

Information and communication

  • It would have been good to know about things like day groups that Mum could go to as she is in the house on her own when I am at work.
  • I don’t have time to explore the options as either at work or meeting Mums care needs.
  • Information about what is available to Carers would have been useful.
  • I found out about Dial a ride from a noticeboard at the supermarket.
  • When Mum needed a blood test she was too unwell to go out and was told by GP practice that it could not be done at home.
  • When a lot of services are involved it is difficult to know who provides what - a summary leaflet would have been useful.
  • Improved communication with Carer from the District Nurse and other services involved:
    The District Nurse goes in to change Mum’s bandages for her ulcer but I do not know when they have been in or whether it is getting better.
  • A feedback form was in notes at home and it was discovered by chance. The envelope to return it did not have full return address on it, just service name.